Last week, I was thrilled to share the result of a project I’d been working on – this website, and new branding for Taylor’s Tale. Especially at Thanksgiving, it felt like the perfect way to cap a momentous year for our charity.
I find it appropriate that so many milestones have happened in 2016, the 10-year anniversary of my sister’s diagnosis and the founding of Taylor’s Tale. One million patients in North Carolina and their families will benefit from Taylor’s Law. Thanks in large part to Abeona Therapeutics, my friend Steve Gray and his team at UNC, a potentially lifesaving gene therapy treatment for kids like Taylor is headed to clinical trial.
We won’t save my sister’s life, but dreams are still coming true. And if anything, this year has reminded me of the importance of hard work, patience and faith.
As for our new look: we’ll never forget our roots – a small but mighty team, fueled by the desire to save the life of one little girl born with Batten disease. But just as Taylor is growing up, Taylor’s Tale is growing up with her. We needed a change.
Inspired by Taylor yet representative of the millions we serve, our new branding reflects the organization’s identity for today and the future: still small, still unwilling to back down from a challenge, determined to make a difference for not just my sister, but one in 10 Americans and 350 million people worldwide. Determined to keep going, because quitting was never Taylor’s style.
I can’t wait to see what tomorrow holds. Thanks to Bill Baker and Courtney Oates for lending their capable hands to help create our new look and feel. Thanks to all of our friends, donors and partners for supporting Taylor’s Tale and families like mine on this journey.