Welcome

From a small group of family and friends who wished to help one young girl, Taylor King, deal with the awful effects of Batten disease, Taylor’s Tale has transitioned into a positive force that advocates for the millions of people worldwide who are affected by rare diseases. We believe that a victory for one is a victory for all.

We’ve contributed to promising research that will help lead to treatments for Batten disease and other rare diseases. While we work on behalf of the one in 10 Americans and the estimated 350 million people whose lives have been tragically touched by a rare disease, we will never lose sight of the individuals represented by those statistics.

The mission that was inspired by the life of one precious girl remains the beacon of Taylor’s Tale to this day, and will continue into the future with your support.

Taylor and her mom Sharon

Taylor and her mom Sharon

Sharon King, president of Taylor’s Tale and Taylor’s mom, shares our journey to advocate for those afflicted with a rare disease, their families, and the thousands of people across the globe who are working tirelessly to develop treatments and ultimately…forever cures.

Read Sharon’s blog, Rare is Everywhere…

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