Taylor’s Tale is a leading voice in the fight against rare disease. Founded to honor one little girl with CLN1 disease (Batten disease), today we work to build a better future for one in 10 Americans – and 350 million people worldwide – who suffer from one of more than 7,000 rare diseases. By advancing breakthrough treatments for Batten disease and advocating for life-changing public policies, we are continuing Taylor’s powerful legacy.

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