Taylor’s Tale is one of the world’s leading voices in the fight against rare disease. Founded in part to save one little girl with Batten disease, today we work to build a better future for one in 10 Americans – and 350 million people worldwide – who suffer from one of more than 7,000 rare diseases. In many cases, rare disorders have devastating consequences and zero approved treatments. By supporting patients and their families, advancing breakthrough treatments and advocating for life-changing legislation, we are continuing Taylor’s powerful legacy.

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