When I crossed the finish line of Charlotte’s Thunder Road Half Marathon blindfolded in November 2013, I knew the race would be a tough act to follow. But I didn’t intend to stop running for my sister, Taylor, and our fight against Batten disease and other rare diseases. That’s why I’m running a race in all 50 states – a feat not as rare as running 13.1 miles blind but one that I hope will help me spread our story far and wide.

A lot of people think you should save the best for last. But my little sister, Taylor, has dreamed of visiting Hawaii since she was tiny. That’s why I signed up to run the Kauai Half Marathon while I could still tell her stories about it. That’s why, on the island of Kauai on Sunday, September 6, Hawaii became state number eight in my quest to run a race in all 50. continue reading →