It’s here – my custom blindfold! I’ve been training for the Thunder Road Half Marathon with a raggedy bandanna, but I thought running 13.1 miles blindfolded for Taylor and the fight against Batten disease called for something special. I ordered my blindfold in Taylor’s Tale purple from the U.K. (I love eBay). About four years ago, I scrawled the phrase “4Taylor” down my left arm in purple marker just minutes before leaving for one of the many races I’ve run in my little sister’s honor since she crossed the finish line of her first 5K, blind and battling for her life. I’ve never run a single race without doing it since. Often, when I come to a steep hill or hit a rough patch in a tough race, I’ll glance down at that phrase on my arm. Even if I’m wearing long sleeves, I know that it’s there. And thinking about Taylor’s courage in the face of the world’s worst disease gives me the extra push I need to dig into my deepest energy reserves. It works every time.

Now that you know exactly what to look for on race day, I hope you’ll join me out on the course if you’re able. Read on to find out how you can be part of the Taylor’s Tale team at Thunder Road or support the cause from afar.

I will run the Thunder Road Half Marathon blindfolded to support gene therapy co-funded by Taylor’s Tale at the University of North Carolina Gene Therapy Center. Donations to this cause are 100 percent tax-deductible. To support my run and our fight to develop treatments for Batten disease and other genetic diseases, click here.

Join the Taylor’s Tale team at Thunder Road! Click here to register for the marathon, half marathon or 5K. On the second page of registration, under “Event Groups/Teams,” select “Taylor’s Tale” from the list under “Choose an Existing Group.” Run for us to help raise awareness on race day. Stay tuned for more details, including special shirts for team members and an informal post-race event!