ePostcard from London

By Laura Edwards

Sharon and Brad

My four-part “Notes from London” series wrapped up with the conclusion of the international conference on neuronal ceroid lipofuscinoses (NCL) yesterday, but I received this photo tonight and had to share it. The smiling young man standing with Mom is 21-year-old Brad of New Zealand, who traveled to London with his father for the family portion of the conference and made quite the impression on my mother (read the post here). Brad suffers from juvenile Batten disease, but his personality energizes a room. I know that meeting Brad will be one of the experiences that sticks with my mother forever.

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