Thanks to our partner, the EveryLife Foundation, for their work on behalf of the rare disease community. The lives of children with Batten disease depend on not only the momentous work being done in research labs across the nation and world, but also on the ability of this research to make the leap from bench to bedside. The EveryLife Foundation’s CureTheProcess campaign – an effort Taylor’s Tale endorsed earlier this year – is dedicated to putting treatments for rare/orphan diseases like Batten disease on the fast track.
A major victory was just scored on behalf of everyone who suffers from rare/orphan diseases, due in large part to the work of our friends at EveryLife. Read the press release.