My Birthday Wish for Taylor

By Laura Edwards

birthday cakeMy sister, Taylor, will turn 15 on Monday. Taylor’s less than half my age, but she’s my hero. She’s done some pretty incredible things in her short life – like run two 5K races despite the fact that she’s blind and suffers from Batten disease, which is pretty much the worst disease on the face of the earth. That’s why, in three months, I’ll run Charlotte’s Thunder Road Half Marathon blindfolded to honor her and help find a treatment for Batten disease.

I’ve had the same birthday wish for Taylor every year since her diagnosis in 2006. I want a world where people like my sister can dream of growing old. I believe in that world. Tomorrow, in honor of my sister’s birthday, you can do one of three things to help Taylor’s Tale achieve that dream:

  • Sign up to run for Taylor at Thunder Road on Saturday, Nov. 16, and help us turn the course purple for Taylor’s Tale. You can run the marathon, half marathon or 5K. Note: blindfold not required. 🙂 Be sure to join our team during the registration process. On the second page of registration, under “Event Groups/Teams, select “Taylor’s Tale” from the list under “Choose an Existing Group.” Run for us to honor Taylor and help raise awareness of Batten disease on race day. In return, you’ll receive a moisture-wicking team shirt and an invitation to an optional post-race get-together. Stay tuned for more details! Click here to register now.
  • Make a gift to Taylor’s Tale in honor of Taylor’s birthday and help support our fight against Batten disease and other rare and genetic diseases. All donations are 100 percent tax-deductible. We fund research that has the potential to lead to treatments for human beings. We’ve supported work at top institutions in the United States and Europe. Today, we’re co-funding work at the University of North Carolina that could lead to life-saving gene therapy for Batten disease and many other genetic diseases. To make a donation, click here.
  • Run 3.1 miles – or a 5K – for Taylor on her birthday, Aug. 19. Visit our Facebook page and share a post about your run. Be creative – share a photo or a description of your run, or just tell us that you did it! You can also connect with us on Twitter. Share your run with us on Facebook and Twitter.

Thank you for helping us write the happy ending to Taylor’s Tale!

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3 Comments On “My Birthday Wish for Taylor

  1. […] Laura wrote My Birthday Wish for Taylor and suggested three things her readers could do to honor her... debruns.com/?p=5232
  2. Debbie @ Deb Runs Reply

    Happy birthday to Taylor! I ran 6.2 miles today in honor of Taylor and to wish her a doubly-happy birthday! 🙂

    1. Member Laura King Edwards Reply

      Debbie, I loved how you not only ran 6.2 miles for Taylor on her birthday, but also took steps to experience it from her perspective. Running blindfolded has helped me treasure my gift of sight, but it has also helped me appreciate the sensory things I miss on my “normal” runs. Others – you can read Debbie’s post about her run for Taylor and give her blog a follow at http://debruns.com/?p=5232.

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