New Video from BDSRA

By Laura Edwards

Please take a few minutes to watch this new video from the Batten Disease Support and Research Association (BDSRA), filmed at the organization’s annual conference in Chicago in August 2010. It’s a wonderful collection of perspectives from families and other individuals deeply affected by Batten disease. I’m featured on the video starting around the 4:30 minute mark. Thank you so much to our friends at BDSRA for creating this great tool in the fight against Batten disease and for allowing me to tell my story. Remember, you can help us fight this tragic disease by spreading the word and also┬áby making a donation here. Thank you for your support!

[vimeo w=400&h=225] The Batten Journey from On Scene Digital Printing on Vimeo.

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