By Laura Edwards

My cousin, Morgan, is a fifth grader. Each night when my Uncle David gets home from work, he gives Morgan and her little sister, Madi, all of his loose change for their piggy banks. One day, Morgan told David and my Aunt Holly that she didn’t want to keep the money anymore. She made a box with a slot in the top for coins and dollar bills; she wrote ‘Taylor’s Tale’ on the outside of the box, and from that day forward, Morgan collected her daddy’s loose change for the fight against Batten disease.

David sits on the Taylor’s Tale board of directors. We had a board meeting last night, and David arrived with a storage-size Ziploc bag bearing about $70 in heavy coin rolls, wrinkled, cotton-soft bills and crisp, new bills.


Some people might read this and think, “Seventy dollars won’t take you very far. It won’t even buy you a well check-up. Life-saving treatments cost a lot of money.”

I’d say they’re half right. Life-saving therapies – the kind that could change the future for kids like Taylor – DO cost a lot of money.

But there’s something priceless about a fifth grader who can read fat novels and swim like a fish saving up all that loose change to help save kids her age who can’t see, talk or walk.

And if enough people had Morgan’s heart of gold, we’d be that much closer to writing the happy ending to this story.

Morgan on the swing

2 Comments On “Priceless

  1. Em Reply

    I wish I could write English better (not my native language). I would like to say so much and comment more often. The power of money, it´s amazing. And Morgan, she really is a girl with a big golden heart <3 In fact 70 dollars is much of money. If only all of those people who have any extra money at all would give 1 dollar, the amount would be huge.

    1. Member Laura King Edwards Reply

      Em, thank you for reading my blog and for sharing your thoughts! You’re absolutely right – Morgan has a big golden heart! 🙂 And if more people followed her example, we’d be far closer to treatments for Batten and other rare diseases. You make a great point – if a LOT of people could even spare one dollar, it would make a huge difference. Taylor’s Tale (our non-profit organization) is based in Charlotte, NC. About one million people live in the Charlotte area. So if all of those people gave one dollar, we’d have a million dollars for the fight against Batten disease. We could make incredible strides with that kind of money.

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