Running for Taylor in 50 States: Pennsylvania

By Laura King Edwards

When I crossed the finish line of Charlotte’s Thunder Road Half Marathon blindfolded in November 2013, I knew the race would be a tough act to follow. But I didn’t intend to stop running for my sister, Taylor, and our fight against Batten disease and other rare diseases. That’s why I’m running a race in all 50 states – a feat not as rare as running 13.1 miles blind but one that I hope will help me spread our story far and wide.

When Taylor was diagnosed with infantile Batten disease in 2006, the doctor advised my parents to take her home and love her. “There’s nothing you can do,” he said.

But giving up wasn’t good enough for them or anyone in my family, least of all Taylor. continue reading →

A “Rare” Race, and Catching up with Philly Advocates

By Laura King Edwards

Four weeks from today, I’ll run my seventh race of an injury-shortened 2015, crossing off state number 10 in my quest for 50.

Along with my mom, Taylor’s Tale President Sharon King, I’m headed to The Keystone State’s largest city, Philadelphia. But I’m not running in a large event like the local Rock ‘n’ Roll Half Marathon or Philadelphia Marathon. Instead, I’ll take on the Bryn Mawr Running Company’s Schuylkill River Loop Race, a cult favorite since its founding in 1972. continue reading →