“Running” for Taylor in 50 States: North Dakota

By Laura Edwards

When I crossed the finish line of Charlotte’s Thunder Road Half Marathon blindfolded in November 2013, I knew the race would be a tough act to follow. But I didn’t intend to stop running for my sister, Taylor, and our fight against Batten disease and other rare diseases.

On National Running Day 2014, I shared my plan to run a race in all 50 states – a feat not as rare as running 13.1 miles blind but one that I hope will help me spread our story far and wide.

Eight months ago, I signed up to run the Fargo Half Marathon, making North Dakota my seventh state. I suffered a stress fracture in my foot while running the Charlottesville Half Marathon in Virginia, state number six, on Easter Weekend. continue reading →


Running for Taylor: A Change of Plans

By Laura Edwards

Eight months ago, I registered to run the Fargo Half Marathon on May 9 – the seventh leg of my 50-state quest to honor my sister Taylor, fight Batten disease and support the millions of people suffering from a rare disease.

There’s been a change of plans. continue reading →