Text to Donate!

By Laura Edwards

Today through Feb. 28, text “RARE” to 85944 to donate $10 to Taylor’s Tale and our fight against Batten disease!

We will receive donations through our partners at the EveryLife Foundation for Rare Diseases, who will match each donation up to a total of $1,000.

You can also donate online here.

If you’re unfamiliar with the EveryLife Foundation, it’s a great organization dedicated to accelerating biotech innovation for rare disease treatments by supporting science-driven public policy. Founder Emil Kakkis, MD, and his team believe we can do more with the scientific knowledge that exists today and bring life-saving treatments to the rare disease community. Currently, there are less than 400 approved treatments for 7,000 rare diseases affecting more than 30 million Americans. We share the EveryLife Foundation’s belief that by removing barriers in the drug development process, we could save more people with the science we already have. We partnered with the EveryLife Foundation in 2010.

The fine print: a one-time donation of $10 will be added to your mobile phone bill or deducted from your prepaid balance. This service is available on Verizon Wireless, AT&T, Sprint and T-Mobile.

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