The Only Race that Matters

By Laura Edwards

Laura and TaylorThis spring, still feeling the high from crossing the finish line of Charlotte’s Thunder Road Half Marathon with a blindfold over my eyes, I decided that while there would never be another Thunder Road, I wasn’t done running for my sister.

On National Running Day, I shared my goal of running a race in all 50 states to honor Taylor’s fight against Batten disease and raise awareness of the millions like her suffering from a rare disease.

I’m almost ready. I put myself through an atypical (for me) training regimen for my first race, and I nearly made it. For the past month, I’ve been dealing with a pesky foot injury that may or may not be a stress fracture. The X-ray came back negative, and I’ve gone on a couple of longish runs without pain, so I’m going to give it a go when the race rolls around. I don’t know that I’ll post a speedy time (then again, sometimes I say that only to turn around and set a PR).

But as Mom and a friend reminded me in two separate conversations in the past 24 hours, my speed doesn’t matter. It never has, and it never should. Taylor wouldn’t care if I came in first or last. If we’re talking about a footrace, all that matters is that I give it my best every single day, even if that means I have to crawl.

In fact, if we’re talking strictly about winning and losing, the only personal race that ever really mattered was the race to save my sister’s life. And every day, I live with the knowledge that I’m losing that race.

But there will always be another Taylor.

That’s why I’ll keep chasing the monster that’s beating us.

Wouldn’t you?

Stay tuned for details about my first race in the challenge to run in all 50 states for the fight against rare diseases! Click here to make a tax-deductible donation in support of Taylor’s Tale, the non-profit organization founded in my sister’s honor.

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2 Comments On “The Only Race that Matters

  1. Jana Curry Reply

    Thank you for your dedication to your sister and to awareness. My husband lost two children to Batten and our family knows firsthand what yours is enduring. He is in the medical field and *nobody* that he encounters has heard of it–your efforts are countering that!

    Until there is a cure, it is up to us to see that Batten kids do not suffer in vain. Know that we are behind you, believe in Taylor and understand.

    Jana Curry
    Spartanburg, SC

    1. Member Laura King Edwards Reply

      Jana,
      Thank you for your note and for reading. I am so sorry to hear about your family’s loss. You’re right that Batten is not well-known, but I believe we’re making headway in our combined efforts to change that for Batten and a lot of rare diseases. Thank you for your support, and know that Taylor’s Tale and I are behind you and families like yours and believe in a better tomorrow for kids like Taylor and your husband’s children.
      Laura

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