Tonight marks the three-year anniversary of Chapter One, the event that started it all for Taylor’s Tale. On the night of February 9, 2007, less than seven months removed from Taylor’s crushing diagnosis, my family told our story publicly for the first time to about 160 guests in the home of two very kind friends, Leslie and Bruce Schlernitzauer. As we turned the last pages of Chapter One, the people there to share it with us joined the fight to cure Batten disease by donating nearly $40,000 to the cause. I still remember the feeling of hope that washed over me as the last guests departed and I discovered the extent of the evening’s success.
I’m turning 28 on March 1, and I have just one birthday wish. Please consider making a gift to Taylor’s Tale, the nonprofit organization I helped found in honor of my younger sister, Taylor, who has infantile Batten disease. Your gift will help us find a cure for children like her. Thank you in advance for your support!
We have two great events scheduled for February! If you fancy wine or music (or both!) and want to help support Batten disease research in 2010-2011, please consider joining us on Feb. 11 and Feb. 28.
Many thanks to everyone who joined us at Terra Restaurant for the Italian edition of Wine Around the World for Taylor yesterday. We had a great evening with our guest vintner, Federico Orsi, and restaurateur Thierry Garconnet and his staff. Thanks also to our hostesses – Stacy Jesso, Anne Pipkin, Amy Romeo, Martha Schmitt, Amy Tribble and Linda Weisbruch.
Just a reminder that Fat Daddy’s Bar & Grill of Raleigh, NC will host a charity night to benefit Taylor’s Tale on Tuesday, Nov. 17 from 5-11 p.m. If you live in the Triangle area and can make it out to Fat Daddy’s that evening, you’ll be supporting the three research projects Taylor’s Tale helped make possible for 2009-2010. Just mention Taylor’s Tale when you place your order, and the restaurant will donate 10 percent of the proceeds from your purchase to our organization.
Don’t forget to come out and support Taylor’s Tale at the Cotswold Chick-Fil-A next Tuesday, October 27 from 5:30-8:30 p.m.! Mention Taylor’s Tale when you place your order, and Chick-Fil-A will donate 15 percent of the proceeds from your purchase to our organization.
This afternoon/early evening, members of the Beverly Woods East Swim Club and friends raised $1,100 for Batten disease research at Cookout for a Cure, a laid-back affair staged at the pavilion tucked into the trees that ring the pool. The results wouldn’t have been possible without the generosity of our chef, Greg Frye (aka Greg’s Swine & Cheese), who slow-cooked the meat to perfection over a span of more than eight hours (during which he was visited by a curious raccoon at his backyard pit when most of the nation was sleeping), as well as Ed and Cindy Gash and Kelly and Mike Crum.
Apparently I’ll do anything for Taylor – including showing off my questionable dance moves on live TV! Thanks to Andre Hairston and everyone from the Taylor’s Tale crew who made the trip over to Fox this morning. Check out our starring role!