We’re approaching the first anniversary of the 2013 Thunder Road Half Marathon, where the story of Taylor’s courage on the race course and in her fight against Batten disease captured the attention of people across the nation. The moment I crossed the finish line of that race blindfolded, I knew the magic of that day could never be repeated.
But I can’t stop running for Taylor, and I’m on a new mission now – a mission to run a race for her in all 50 states to spread this story far and wide. I’ve run around the rim of Oregon’s Crater Lake, where she and my parents found solace during her time in a historic clinical trial in Portland; I’ve run through Tennessee’s Great Smoky Mountains, just a stone’s throw from the village of Blowing Rock where we made a lot of happy memories together and my sister made the best “senior” flower girl ever on my wedding day; I’ve run in Taylor’s purple witch costume in a Great Pumpkin race in South Carolina to commemorate Halloween, her favorite holiday when she could still trick-or-treat. In the next 10 months, I’ll take Taylor’s story from North Dakota’s Red River Valley to Hawaii’s lush gardens.
First, though, comes the 2014 edition of Charlotte’s Thunder Road Half Marathon, where I’ll run 13.1 miles for my little sister as she recovers from her second surgery in a difficult year. About the time I reach the four-mile mark of the half marathon, at 8:15 a.m., approximately 30 parents and teens affiliated with an organization called Playing for Others will begin the Thunder Road 5K. The parents will be blindfolded; the teens will be their guides. In completing the 5K blindfolded, they’re honoring Taylor’s story and the fight for a better future for millions of people like her.
I wish I could run my race AND be there to see Playing for Others finish the 5K. But my experience training to become a blind runner and my relationship with my blind sister have taught me that some of the most beautiful things in this world do not have to be seen to be felt.