Even in Death

By Laura Edwards

When Taylor was diagnosed with Batten disease in 2006, we almost succumbed to the pain. We almost didn’t fight.

I will never forget how my Grandma Kathryn – who loved her grandchildren more than her own life – urged us to face the demon; how she helped us find the strength to believe.

In 2008, Grandma Kathryn was diagnosed with Lewy body dementia, another neurodegenerative disorder.

An angel in life, she earned her wings on Christmas Day, 2012.

This week, members of my mom’s book club sent gifts to Taylor’s Tale in my grandmother’s memory – a complete surprise to us all.

Many others have also given to our cause in Grandma Kathryn’s memory since her passing two weeks ago.

There was nothing my grandmother wanted more than for there to be an answer for Batten disease – the monster that dared to steal her grandchild from her. And nothing would have made her happier than to know that people gave to the fight in her memory.

Even in death, she still manages to take care of her family.

That’s my Grandma Kathryn.

I’ll always love you. And I’ll never, ever stop fighting for Taylor. Because that’s what you would have done.

Make a Gift to Taylor’s Tale


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