Garrett Campbell of Charlotte lost a short battle with infantile Batten disease on Dec. 30, 2007, just three months after his diagnosis. He was 2 years old.
Though a cure couldn’t come quickly enough for Garrett, his parents have dedicated themselves to providing hope for other children facing life-threatening diseases and offering support to their families along the difficult road traveled by anyone touched by a terminal illness. In memory of their beautiful son, they established Garrett’s Wings, a 501(c)3 non-profit organization. Garrett’s Wings offers comfort and non-medical care to families like those affected by Batten disease and, like Taylor’s Tale, provides funding for infantile Batten disease research.
The signature event for Garrett’s Wings is the Take Flight Triathlon, held each October at the NOMAD Aquatic Center in Huntersville, NC, just north of Charlotte. Garrett’s father, Scott, an avid triathlete, pours his heart and soul into this USA Triathlon-sanctioned event. This year, Scott and his team are in need of additional volunteers on race day – Sunday, Oct. 9. The race will start at 7:30 a.m., and the most help is needed between the hours of 7 and 10 a.m. (but Scott indicated that they would welcome volunteers whenever they are available that morning). Volunteers will receive a T-shirt, breakfast snacks and unending gratitude from the Garrett’s family and the entire Garrett’s Wings team.
If you are interested in volunteering for this wonderful cause, send an email to email@example.com.
Of course, you can also support the fight against infantile Batten disease by signing up for the race! Sign Up Now
Thanks in advance for supporting this family and their efforts on behalf of people fighting life-threatening diseases!